Rare kids deserve big futures. We’re helping build them.
Together, we’re funding research towards the world’s first treatment for SCN2A, and a better future for children living with the condition.
Cure SCN2A began after our son Jack was diagnosed with a rare SCN2A mutation. When we were told there was no treatment for his condition, we had two choices:
Do nothing, or fight for a cure.
We chose to fight.
The little boy behind a big movement.
MEET JACK
THE CAUSE
What is SCN2A?
SCN2A is a gene that helps brain cells send the signals needed for the brain to develop and function. When the gene is not working as it should, those signals can be disrupted - affecting development, communication, movement and, for some children, causing severe seizures.
There is currently no approved treatment that addresses the underlying cause of SCN2A-related disorder.
Our Goal: Develop a treatment for SCN2A by 2030.
Backed by an Incredible Community
OUR COMMUNITY
Our local community is coming together to prove that no child is too rare to care.
$450,000+
Raised Since Launch
600+
Individual Donors
30+
Business Supporters
2
Community Campaigns
CURRENT CAMPAIGNS
Our Current Campaigns
24 OCT 26 • SYDNEY
Bondi to Manly Ultra 2026
With close to 100 runners, Cure SCN2A is set to be the largest charity group participating at the event. All running for Jack, for SCN2A and for the rare disease community.
MARCH 2027 • PILU AT FRESHWATER
A Rare Affair 2027
After a successful inaugural A Rare Affair in 2026, we are returning to Pilu at Freshwater for another unforgettable evening in support of Cure SCN2A.
One family’s fight, but a much bigger story
“RARE” ISN’T RARE
Individually, rare conditions like SCN2A are easy to overlook.
Collectively, they affect 1 in 12 Australians. Progress in precision genetic medicine can build the science, tools and treatment pathways that accelerate progress across many other rare conditions.
MEDIA & NEWS
A mission worth sharing
FOR BUSINESS & PHILANTHROPY
Partner with us
Businesses, philanthropists and foundations can support our work through corporate partnerships, events, donations and in-kind support.
OUR SUPPORTERS INCLUDE
Every child deserves the chance of a treatment
Whether you donate, support a campaign, partner with us, or simply follow along - you're helping bring the first treatment for SCN2A closer.
STAY CLOSE TO THE MISSION