Rare kids deserve big futures. We’re helping build them.
Together, we’re funding research towards the world’s first treatment for SCN2A, and a better future for children living with the condition.
Cure SCN2A began after our son Jack was diagnosed with a rare SCN2A mutation. When we were told there was no treatment for his condition, we had two choices:
Do nothing, or fight for a cure.
We chose to fight.
The little boy behind a big movement.
MEET JACK
ABOUT THE CAUSE
What is SCN2A?
SCN2A is a gene that helps brain cells send the signals needed for the brain to develop and function. When the gene is not working as it should, those signals can be disrupted - affecting development, communication, movement and, for some children, causing severe seizures.
There is currently no approved treatment that addresses the underlying cause of SCN2A-related disorder.
Our Goal: Develop a treatment for SCN2A by 2030.
Backed by an Incredible Community
OUR COMMUNITY
Our local community is coming together to prove that no child is too rare to care.
$550,000+
Raised Since Launch
800+
Individual Donors
50+
Business Supporters
2
Community Campaigns
CURRENT CAMPAIGNS
Our Current Campaigns
24 OCT 26 • SYDNEY
Bondi to Manly Ultra 2026
With 100+ runners, Cure SCN2A is set to be the largest charity group participating at the event. All running for Jack, for SCN2A and for the rare disease community.
MARCH 2027 • PILU AT FRESHWATER
A Rare Affair 2027
After a successful inaugural A Rare Affair in 2026, we are returning to Pilu at Freshwater for another unforgettable evening in support of Cure SCN2A.
One family’s fight, but a much bigger story
“RARE” ISN’T RARE
Individually, rare conditions like SCN2A are easy to overlook.
Collectively, they affect 1 in 12 Australians. Progress in precision genetic medicine can build the science, tools and treatment pathways that accelerate progress across many other rare conditions.
MEDIA & NEWS
A mission worth sharing
FOR BUSINESS & PHILANTHROPY
Partner with us
Businesses, philanthropists and foundations can support our work through corporate partnerships, events, donations and in-kind support.
OUR SUPPORTERS INCLUDE
Every child deserves the chance of a treatment
Whether you donate, support a campaign, partner with us, or simply follow along - you're helping bring the first treatment for SCN2A closer.
STAY CLOSE TO THE MISSION